Ethan’s Legacy: A Life that Mattered
IN JANUARY 2013, 26-year-old Ethan Saylor went to see Zero Dark Thirty with his aide, Mary, at a movie theater in F rederick County, Maryland. After the movie ended, Mary left to get her car, and Ethan went back into the theater to watch the movie again. When the theater manager asked him to leave […]
Republicans and Democrats Agree: Increase NIH Funding for Down Syndrome Research
A STANDING OVATION, A TESTIMONY THAT WENT VIRAL, AND BIPARTISAN SUPPORT DEFINE A FIRST-EVER CONGRESSIONAL HEARING FOCUSED ON DOWN SYNDROME RESEARCH. THE GLOBAL DOWN SYNDROME FOUNDATION has been working with the National Institutes of Health (NIH) and members of the U.S. House of Representatives and Senate for nearly a decade advocating for increased federal funding […]
CBS News Report About Iceland’s Prenatal Testing Practices Shocks Americans
PRENATAL SCREENING TESTS offer parents-to-be unquestioned benefits, including the opportunity to understand their chances of having a baby with Down syndrome. Prenatal counseling should provide accurate, balanced information about what a diagnosis of Down syndrome could mean and can provide people with an opportunity to plan not only for a child with Down syndrome but […]
CBS News – Meet the high-powered Washington lobbyist with Down syndrome
WASHINGTON — Kayla McKeon may be Washington’s most unlikely powerbroker. As the first registered lobbyist with Down Syndrome, the 31-year-old roams the Capitol advocating for the National Down Syndrome Society. “She’s an incredible asset to this organization,” said her boss, Sarah Hart Weir. “She’s extremely articulate. And she’s quick on her feet.” “And I’m not […]
