Rep. Tom Cole(R-OK) (Center) with (From Left) Doris and Aaron Erhart and Heather and Lisa Hancock of Oklahoma City

Republicans and Democrats Agree: Increase NIH Funding for Down Syndrome Research

A STANDING OVATION, A TESTIMONY THAT WENT VIRAL, AND BIPARTISAN SUPPORT DEFINE A FIRST-EVER CONGRESSIONAL HEARING FOCUSED ON DOWN SYNDROME RESEARCH. THE GLOBAL DOWN SYNDROME FOUNDATION has been working with the National Institutes of Health (NIH) and members of the U.S. House of Representatives and Senate for nearly a decade advocating for increased federal funding […]

Girl with Down syndrome makes heart gesture with hands

CBS News Report About Iceland’s Prenatal Testing Practices Shocks Americans

PRENATAL SCREENING TESTS offer parents-to-be unquestioned benefits, including the opportunity to understand their chances of having a baby with Down syndrome. Prenatal counseling should provide accurate, balanced information about what a diagnosis of Down syndrome could mean and can provide people with an opportunity to plan not only for a child with Down syndrome but […]

Kayla of the National Down Syndrome Society

CBS News – Meet the high-powered Washington lobbyist with Down syndrome

WASHINGTON — Kayla McKeon may be Washington’s most unlikely powerbroker. As the first registered lobbyist with Down Syndrome, the 31-year-old roams the Capitol advocating for the National Down Syndrome Society. “She’s an incredible asset to this organization,” said her boss, Sarah Hart Weir. “She’s extremely articulate. And she’s quick on her feet.” “And I’m not […]

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